A couple weeks ago I had the privilege of meeting Emily. She’s such a fun and spunky 3 year old.
This precious girl lights up the room with laughter and smiles.
Her mama, Mary, calls her a “Prissy Tom-girl” as she digs in the dirt with her shovels and carries around her purse.
Emily can sing “Twinkle Twinkle Little Star.” She loves to twirl and dance. She’s mostly a typical 3 year old.
Except Emily isn’t a typical 3 year old.
She has a rare disease called Eosinophilic Esophagitis. EoE is an inflammatory disorder where most foods cause white blood cells to attack the esophagus. Most EoE patients can eat 5 or fewer foods and depend on specialized formula that costs over $700 a month. There is no cure for EoE and the treatment is incredibly invasive.
Emily’s brave mama is on a mission to help bring awareness and research funds to eosinophilic esophagitis. Right now at the Bi-lo on Hudson Road in Greer, Mary is hosting a fund raiser called “Hope for Emily.” You can donate with your cashier at check-out through June 18th. Here’s a short clip of Mary talking about this fundraiser.
If Emily’s story touches you, and you’re unable to go to the Hudson Road Bi-lo, you’re welcome to donate to the research fund here.